Advocacy and Public Policy Updates View Archived Updates
2010 Medicare Rx Drug Benefit Open Enrollment Period November 16, 2009 The ALS Association encourages people with ALS who are enrolled in Medicare to take advantage of the annual Open Enrollment period to make sure they have the best coverage available to meet their prescription drug and health care needs in 2010.  The open enrollment period takes place November 15 to December 31, 2009.    The ALS Association once again is pleased to provide a Guide to assist PALS, families and ALS Association Chapters as they review options for 2010.   The Guide is available by clicking here and soon will be posted on The Association's website. Read full story >>
CDC/ATSDR Launch National ALS Registry Website October 8, 2009 On October 8, the Centers for Disease Control and Prevention/Agency for Toxic Substances and Disease Registry (CDC/ATSDR) launched the National ALS Registry website.  This is the first phase of building a website that later will include an online portal where people with ALS can enroll in the ALS Registry.  The website is available here.    In this initial phase, the ATSDR is providing up-to-date information about the registry, including answers to frequently asked questions.  The site also includes helpful information about the disease itself, such as links to information about ALS research and clinical trials as well as to organizations, like The ALS Association, that provide assistance and support to people with ALS and their families.    Read full story >>
Help Increase Funding for ALS Research October 8, 2009   My name is Jeff Faull and I am the married father of two beautiful daughters.  I was diagnosed with ALS in 2007 at the age of 38 after serving two tours of duty in the United States Navy.  I am writing to ask that you join me in urging Congress to increase funding for the ALS Research Program (ALSRP) at the Department of Defense.   The ALSRP is the only program at the DOD dedicated specifically to ALS, a disease that strikes veterans at twice the rate as the general public.  But what really makes this program so vital is that it is supporting translational research with the explicit goal of finding a treatment for ALS - something that will benefit everyone fighting this disease. Read full story >>