Fundraising and advocacy does work. I remember when the ALS Ice Bucket Challenge went viral I had no idea what ALS was. I watched a video about ALS and instantly saw a connection to muscle weakness issues my mother was dealing with, which she just contributed to a lack of exercise. Throughout mom's battle, I always wanted the decline to slow, for a medication be created, for something....because for ALS, there is nothing. There is no cure, there is nothing to do. 

And because of this...we spent a majority of our time looking for something that MIGHT work. The last two years of her life was a constant search for the next best tool and hope for a breakthrough.

My mother didn't get to see that happen. She lost her fight to ALS on December 16, 2016. I lost my mother. I had no idea how earth shattering this would be, I feel her loss everyday. 

I carry the best of my mother with me and I will forever. 

Now onto the scripted message with a lot of great statistics and additional reasons to donate and advocate!

Thank you for helping me reach my Walk to Defeat ALS® fundraising goal. This is an exciting opportunity for us to work together to support those affected by Lou Gehrig's Disease and to spread awareness of the urgency to find treatments and a cure.

The past two years have brought incredible advancements in ALS research, expanded access to care for ALS patients, and enabled legislation that impacts the quality of life of patients and their families. WE CAN'T STOP NOW!

Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease. 

Why We Need Your Help

Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.

Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.

This crippling disease can strike anyone. Presently there is no known cause of the disease though support is bringing researchers closer to an answer. In the mean time it costs an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.

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